Introduction. 1. What Progressive Memory Loss Means to You: Claiming the Diagnosis. 2. Maintaining Personhood. 3. Maintaining Important Roles in Your Life. 4. Understanding the Stigma of Progressive Memory Loss: Managing Your Responses to the Behaviors of Others. 5. Communicating with Others. 6. Staying Active and Functional. 7. Staying Physically Healthy: Managing Physical Illnesses, Medications, and Self-Care Needs. 8. Staying Mentally Healthy: Managing Memory Loss and Impaired Thinking. 9. Finding Hope. References. Bibliography. Index.
Practical guidance for coping with progressive memory loss, including examples from real people who have faced similar challenges
Sandy Burgener, Ph.D., is Associate Professor at University of Illinois College of Nursing and a certified Gerontological Nurse Practitioner with a clinical and research focus on increasing quality of life for persons with progressive memory loss or dementia. She is a Fellow of the American Academy of Nursing and the Gerontological Society of America Prudence Twigg, Ph.D., is a Visiting Lecturer at Indiana University School of Nursing.
This book provides practical guidance for coping with progressive
memory loss and includes examples of real people who have faced
such challenges. These stories highlight both good and bad ways to
deal with the problems that arise and are also useful for
describing the experiences of memory loss to friends and family.
The authors suggest ways of maintaining physical and mental health
by staying active and engaged in society. They also offer
techniques for improving, communication, preserving self-esteem and
overcoming the stigma associated with memory loss.
*Human Givens*
This book presents us all with a challenge to see that we have a
real part to play in helping dementia suffers maximize the quality
of their lives. They emphasise this in commending hope. "Hope lets
you continue to celebrate who you are as a person. Hope is worth
striving for and keeping in your life". Amen to that, I warmly
commend this book which can enlarge our understanding and encourage
us in our care of all who suffer from Progressive Memory Loss.
*Plus Magazine (Christian Council on Ageing)*
The information is concise and easy to read with the use of
individual experiences from support groups to help others in
similar situations. It enables people to understand the process of
loss that occurs and how an individual can remain in control of
their lives, with support, for as long as possible. Not only does
this help sufferers, but also those who care for them, to
understand the experience from the perspective of the person with
the diagnosis. Maintaining the individual's personhood requires not
stepping in early to take away roles too quickly. By reading this
book, you are able to get a sense of a positive outlook on what
could be such a negative experience; it is quite uplifting. It is
not end but just the beginning of a new and very different chapter
in the lives of that person, their family and friends.
*Signpost*
The book speaks to people diagnosed with diseases that cause
progressive memory loss, a resource guide to help them to manage
the disease and consider different treatments... The core of this
manual are the four chapters on staying active and functional,
staying physically healthy, staying mentally healthy and, most
importantly, finding hope. The chapters include constructive
discussions about medication and non-medical treatment and meeting
self-care needs. The emphasis is on normal living. Utilising social
support and emphasizing the health benefits of non-medication
treatments. Checklists, non-sentimental illustrations and a
comprehensive bibliography complement this excellent text. Strongly
recommended.
*London Centre for Dementia Care*
This book empowers people living with dementia, signposting hope,
choice and a life to be lived. I wholeheartedly recommend it.
*John Keady PhD RMN, Professor of Older People's Mental Health
Nursing The University of Manchester/Bolton, Salford and Trafford
Mental Health NHS Trust and Co-Editor of Dementia: the
International Journal of Social Research and Practice*
Expert gerontological nurses Burgener and Twigg have collaborated
to produce a uniquely-focused, incredibly informative and
thoughtful book to assist persons primarily in the early stages of
dementia better adjust to and manage their disease. Although the
contents are clinically and empirically based, the book is highly
readable and practical, and provides broad-based treatment options
and hope to newly diagnosed persons with dementia and those who
love and care for them.
*Kathleen C. Buckwalter, PhD, RN, FAAN, Sally Mathis Hartwig
Professor of Gerontological Nursing and Research Director of The
University of Iowa John A. Hartford Center of Geriatric Nursing
Excellence*
A Personal Guide to Living with Progressive Memory Loss serves as a
commitment to inclusive education and is a landmark self-help book
that focuses on the needs of the person with the diagnosis. It
expands what is currently offered to people with memory loss in a
sensitive and contemporary way. A must have for every memory clinic
and health and human service agency.
*Linda L. Buettner, Professor at the University of North Carolina
at Greensboro, Alzheimer's Association Early Stage Task Force*
This book is rare, if not unique, in that its stated audience is
people diagnosed with diseases that caure progressive memory loss
and difficulty with thinking.
In the developing culture of wellbeing and recovery for older with
mental health needs this text clearly gives examples of how people
with progressive memory loss can take control (with or without the
assistance of those around them) to shape their own lives. For this
alone I would recommend this book.
*Older People and Occupational Therapy*
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