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Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions-patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis.
Lynne P. Taylor (MD, FAAN) is Associate Professor of Hematology-Oncology and Neurology at Tufts Medical Centre in Massachusetts. Dr. Taylor received her residency training in neurology at the University of Pennsylvania and fellowship training in neuro-oncology at Memorial Sloan-Kettering Cancer Center in New York. Alyx B. Porter Umphrey (MD) is the Diretor of Neuro-Oncology and is Assistant Professor of Medicine and Neurology at the Mayo Clinic in Arizona. She completed her residency and neuro-oncology fellowship at the Mayo Clinic in Rochester, Minnesota. Diane Richard is a Minneapolis-based reporter, radio producer and writer. Her documentaries have aired on radio stations nationwide, and her writing, focused on profiles and features, has been published in magazines throughout the Twin Cities.
Show moreNavigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions-patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis.
Lynne P. Taylor (MD, FAAN) is Associate Professor of Hematology-Oncology and Neurology at Tufts Medical Centre in Massachusetts. Dr. Taylor received her residency training in neurology at the University of Pennsylvania and fellowship training in neuro-oncology at Memorial Sloan-Kettering Cancer Center in New York. Alyx B. Porter Umphrey (MD) is the Diretor of Neuro-Oncology and is Assistant Professor of Medicine and Neurology at the Mayo Clinic in Arizona. She completed her residency and neuro-oncology fellowship at the Mayo Clinic in Rochester, Minnesota. Diane Richard is a Minneapolis-based reporter, radio producer and writer. Her documentaries have aired on radio stations nationwide, and her writing, focused on profiles and features, has been published in magazines throughout the Twin Cities.
Show moreSECTION 1: WHERE DO I BEGIN?
Introduction
Step 1: Take a Deep Breath
Step 2: Seek Out Information
Step 3: Assemble Your Team
Step 4: Keep a Journal
Chapter 1: A Look Inside Your Brain
Basics about the Brain
Understanding Brain Tumors
A Search for Why
Getting a Diagnosis
Chapter 2: Diagnosing Your Brain Tumor
Assessment and Plan
Getting the Medical Help You Need
Assembling Your Team
Finalizing Your Treatment Team
Understanding Your Prognosis
Time to Take Charge
Chapter 3: Understanding Radiation Therapy
Members of the Radiation Oncology Team
Important Considerations
Side Effects of Radiation Therapy
Retreatment
Radiation Therapy for Brain Metastases
Radiation Therapy for Meningioma
SECTION 2: HOW DO I DEAL WITH THIS?
Chapter 4: Lifestyle Management
Feel Empowered
Reduce Stress
Breathe Deeply
Consider Meditation
Move Your Muscles
Eat Well
Herbal and Dietary Supplements
Driving
Working
Support Groups
Cosmetic Issues
Creativity and Art as Therapy
Chapter 5: Symptom Management and Palliative Care
Symptoms
"Big Picture" Topics to Keep in Mind
Chapter 6: Care of the Caregiver
Pre-Surgery
During Treatment
Recurrence
Chapter 7: Legal and Financial Issues
Financial Planning
Advance Directives
Living Wills
HIPAA-What Information Do I Have Access to and How to Make the Most
of It
Maintaining Tracking Information through Electronic Medical
Records
ADA Issues
SECTION 3: WHAT CAN I AND MY MEDICAL TEAM DO ABOUT IT?
Chapter 8: Tumors within the Skull Yet Outside the Brain
Basics about Meningioma
Treating Atypical and Malignant Meningiomas
Pituitary Adenoma
Acoustic Neuroma
How Will Having One of These Tumors Affect My Life?
Chapter 9: Primary Brain Tumors
Understanding Your Treatment Options
Understanding Your Pathology Report
Radiation Therapy and Chemotherapy
Chapter 10: Understanding Metastatic Brain Tumors
Symptoms
Diagnosis
Treatment
Prognosis
Leptomeningeal Disease
APPENDIX
Resources
GLOSSARY
Lynne P. Taylor, MD, FAAN, is Associate Professor (appointment
pending), Hematology-Oncology and Neurology at Tufts Medical Center
in Massachusetts. Dr. Taylor received her residency training in
neurology at the University of Pennsylvania and fellowship training
in neuro-oncology at Memorial Sloan-Kettering Cancer Center in New
York.
Alyx B. Porter Umphrey, MD, is the Director of Neuro-Oncology and
is Assistant Professor of Medicine and Neurology at the Mayo Clinic
in Arizona. She completed her residency and neuro- oncology
fellowship at the Mayo Clinic in Rochester, Minnesota.
Diane Richard is a Minneapolis-based reporter, radio producer, and
writer. Her documentaries have aired on radio stations nationwide,
and her writing has been published in magazines throughout the Twin
Cities.
"The legal advice dovetails perfectly with that of the medical
specialists to make this an all-encompassing work. VERDICT
According to the authors, knowledge is power, and information can
be some comfort when everything is suddenly so unpredictable. This
book would be an excellent companion to Virginia Stark-Vance's 100
Questions & Answers About Brain Tumors."
-- Library Journal
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