Section 1: Overview of Oncology Social Work
Carolyn Messner
1. Cancer in Contemporary Society: Grounding in Oncology and
Psychosocial Care
Stewart B. Fleishman and Carolyn Messner
2. Oncology Social Work: Past, Present, and Future
Susan Hedlund
3. Integrating Research and Evidence-Based Practice with Clinical
Knowledge
Julianne S. Oktay
4. Oncology and Health Care Disparities
Anjanette Wells, Darrell Hudson, Lorena Estrada-Martinez, and Sarah
Gehlert
5. Meeting Psychosocial Health Needs: An Institute of Medicine
Report Comes to Life
Kim Day
Section 2: Cancer across a Continuum of Care: Clinical Practice,
Opportunities, and Challenges
Brad Zebrack
6. Oncology Social Work Interventions throughout the Continuum of
Cancer Care
Brad Zebrack, Barbara L. Jones, and Kathryn M. Smolinski
7. Diagnosis and Initiation of Cancer Treatment
Karen Kell Hartman
8. Sense Making in Living with Cancer as a Chronic Illness
Paul G. Clark and Sage Bolte
9. Cancer Survivorship: Concepts, Interventions, and Research
Penny Damaskos and Carly Parry
10. Transition to End-of-Life Care in Oncology
Deborah Waldrop and Sherri Weisenfluh
Section 3: Psychosocial Challenges of Site-Specific Cancers
Carolyn Messner
11. The Biopsychosocial Implications of the Site of the Cancer
Carolyn Messner, Caroline Kornhauser, and Rosalie Canosa
12. Living with a Rare Cancer Diagnosis: A Survivor's
Perspective
Patrick Garbe
13. Working with Men Challenged by Prostate Cancer
Les Gallo-Silver
14.The Many Dimensions of Breast Cancer: Determining the Scope of
Needed Services
Roz Kleban and Susan Glaser
15.Hematologic Cancers: Patients' Needs for Specialized Care
Kate Pederson, Brian Tomlinson, and Lisa O'Brien
16. When the Other Shoe Drops: Unique Fears and Challenges of
Recurrent Disease
Elizabeth Ezra and Maria Chi
Section 4. Implementing Distress Screening Initiatives in
Oncology
Grace Christ
17. Distress Screening Guidelines for Oncology Social Workers
James R. Zabora
18. Development of a National Canadian Program for Oncology Stress
as the 6th Vital Sign
Barry D. Bultz, Matthew Loscalzo, and Shannon Groff
19. Touch-Screen Technology: Using a Problem Checklist for
Psychosocial Oncology Screening
Karen Clark, Matthew Loscalzo, and Barry D. Bultz
20. Distress Screening and Responding in an Ambulatory Cancer
Center
Jill Taylor-Brown and Heather Campbell-Enns
21. Screening and Assessment of Suicide Risk in Oncology
Mark E. Anderson, Margrett R. Myhre, Donna Suckow, and Angela
McCabe
22. Using Telehealth to Respond to Distress in Rural and Remote
Chemotherapy Clinics
Carole Mayer and Sheila Damore-Petingola
23. Next Steps for Psychosocial Screening in Oncology
Lynne E. Padgett, Carly Parry, and Stephen Taplin
Section 5: Social Work Research: Challenges and Opportunities
Karen Kayser
24. An Agenda for Oncology Social Work Research: From Bench to
Bedside to Trench
Karen Kayser
25. Practice Relevant Research in Oncology: Science Is What You Do
When You Don't Know What to Do
Taryn Lindhorst
26. Finding Funding for Oncology Social Work Research
Mary Ann Burg
27. Writing Proposals for Foundations and Governmental Agencies
Guadalupe R. Palos
28. Opportunities for Social Work Research in Oncology
Carly Parry and G. Stephane Philogene
Section 6. Complex Issues Affecting Quality of Life and Quality of
Care
Shirley Otis-Green
29. The Convergence of Oncology and Palliative Social Work
Terry Altilio and Bridget Sumser
30. Treatment Adherence
Brian Giddens
31. The Impact of Comorbidities on Cancer Care
Barbara Head
32. Social Work Practice with Families Affected by Hereditary
Cancer
Allison Werner-Lin
33. Pain and Symptom Management
Terry Altilio and Laurel Eskra Tropeano
34. Sexuality and Cancer
Sage Bolte and Christopher Anrig
35. The Oncology Social Worker and Genomics
Allison Werner-Lin
Section 7. Sociocultural and Economic Diversity: Improving Access
and Health Outcomes
Yvette Colón
36. Working with Sociocultural and Economic Diversity
Yvette Colón
37. Support for Immigrants, Political Refugees, and Patients
Seeking Asylum Who Have Cancer
Amanda Amodio and Upal Basu Roy
38. Gay, Lesbian, and Bisexual Individuals Diagnosed with
Cancer
Kathryn M. Smolinski and William Goeren
39. Transgender Individuals and Families Affected by Cancer
Max Rorty
40. Alaska Native, Native American, and First Nation People:
Outreach, Screening, and Assessment
Karina L. Walters, Teresa Evans-Campbell, Matthew A. Town, Katie
Schultz, Jessica H. L. Elm, and Ramona E. Beltrán
41. Access to Medical Treatment for African Americans Diagnosed
with Cancer: The Current Evidence Base
Karen Bullock and Hannah Allison
42. Hispanic/Latino Individuals and Families Affected by Cancer:
Outreach, Screening, and Assessment
Guadalupe R. Palos
43. Working with Chinese Families Impacted by Cancer: An
Integrative Body-Mind-Spirit Approach
Pamela Pui-Yu Leung and Cecilia L. W. Chan
Section 8: Assessment and Interventions with Adults Living with
Cancer
Hester Hill Schnipper
44. Interventions and Ongoing Assessment With People Living With
Cancer
Hester Hill Schnipper and Ashley Varner
45. Time Enough to Make a Difference: Helping Our Patients Live
Well With Advanced Cancer
Hester Hill Schnipper
46. Integrating Spirituality in Oncology Care
Shirley Otis-Green and Reverend Terry L. Irish
47. Clinical Group Work: Embracing Opportunities, Navigating
Challenges
Erin Columbus and Kate Wakelin
48. Assessing and Intervening with the Spectrum of Depression and
Anxiety in Cancer
Carole F. Seddon and Hester Hill Schnipper
49. Using Cognitive and Behavioral Approaches Throughout the Cancer
Experience
John G. Cagle and Matthew Loscalzo
50. Meaning-Making Approaches to Social Work Practice in
Oncology
Carrie Lethborg and Lou Harms
51. Schema Therapy With Oncology Patients and Families
Lissa Parsonnet
52. Practice Issues in Social Work and Psychosocial Oncology in
Israel
Shlomit Perry
53. Oncology Social Work Practice in Integrative Medicine
Cecilia L. W. Chan and Richard R. Dickens
Section 9: Interventions with Families and Caregivers in
Oncology
Susan Hedlund
54. Introduction to Working with Families in Oncology
Susan Hedlund
55. Caregivers of Cancer Patients
Ashley Varner
56. Psychosocial Interventions With Couples Affected by Cancer
Karen Kayser and Jennifer L. Scott
57. Managing Family Conflict: Providing Responsive Family Care at
the End of Life
Betty J. Kramer and Amy Z. Boelk
58. Family and Team Conferencing in Oncology
Iris Cohen Fineberg
Section 10: Interventions with Parental Cancer, Dependent Children,
and Adolescents
Lynn Behar
59. Parental Cancer: Developmentally Informed Practice Guidelines
for Family Consultation and Communication
Grace Christ
60. Single Parents Coping With Cancer and Children
Lynn Behar and Frances Marcus Lewis
61. A Parallel Group Program for Parents and Children: Using
Expressive Techniques and Activities to Facilitate
Communication
Krista Nelson
Section 11: Pediatrics: Assessment and Interventions With Children
and Adolescent Cancer Patients-The Unique Challenges of Pediatric
Oncology
Barbara L. Jones
62. Interventions for Children under Age 15 Living With Cancer
Lori Wiener and Ursula M. Sansom-Daly
63. Interventions for Adolescents Living With Cancer
Rebecca G. Block
64. The Family Experience in Pediatric Oncology
Nancy F. Cincotta
65. Helping Siblings of Pediatric Cancer Patients
Nancy F. Cincotta
66. Reaching Out to Culturally Diverse Populations in Pediatric
Oncology
Nancy Contro and Analisa Trott
67. Pediatric Cancer Survivors
Kate Shafer and Constance Connor
68. Pediatric Palliative Care
Stacy S. Remke
Section 12: Impact of a Cancer Diagnosis Across the Adult Life
Span
Tara Schapmire
69. Young Adults (20 to 39) With Cancer
Sage Bolte
70. Parents of Younger Adults With Cancer
Susan Hedlund
71. Cancer and Middle-Aged Adults (40 to 64)
Cindy Davis and Connie Rust
72. Cancer and Older Adults (65 Plus)
Tara Schapmire and Anna Faul
73. Working With Families of Older Adults with Cancer
Daniel S. Gardner
Section 13: Loss, Grief, and Bereavement
Mary Sormanti
74. Understanding Bereavement: How Theory, Research, and Practice
Inform What We Do
Mary Sormanti
75. Spousal/Intimate Partner Loss and Bereavement
Deborah Carr
76. Mourning the Death of a Child
Nancy F. Cincotta
77. Developing Culturally Informed Research on Bereavement
Interventions
Amy Yin Man Chow
78. Leading Bereavement Groups
Richard T. Hara and Rachel Odo
Section 14: Patient- And Family-Centered Care: Social Work Role and
Organizational Models for Psychosocial Services
Nancy W. Newman
79. Patient- and Family-Centered Care: A National Mandate and
Social Work Goal
Nancy W. Newman and Cynthia Medeiros
80. Integrated Interdisciplinary Staff Leadership Model of
Patient-Centered Care
Matthew Loscalzo, Karen Clark, and Barry D. Bultz
81. Directing Stand-Alone Social Work Department Models
Margaret Weld Meyer and Wendy J. Evans
82. Creating Innovative Cancer Support Programs in Community Cancer
Centers
Alison Mayer Sachs and Kerry Irish
83. Managing Volunteer Services in Oncology
Catherine Credeur and Christine Healy
Section 15: U.S. Health Care Advocacy: Legal and Ethical Issues in
Oncology
Gary L. Stein
84. Historic and Current Perspectives on Health Care Reform
Gunnar Almgren
85. Bioethical Issues in Oncology and the Social Work Response
Gary L. Stein and Jeanne Kerwin
86. Improving Pain Care Policy: Implications for Social Work
Advocacy
Mary Beth Morrissey
Section 16: Care Coordination, Managing Transitions, Providing
Resources
Carol P. Marcusen
87. Transitions during Cancer Care
Carol P. Marcusen
88. Patient Navigation in Oncology
Melissa Sileo Stewart and Rian Rodriguez
89. Bridging Increasing Financial Gaps and Challenges in Service
Delivery
Jane Levy and Michele McCourt
90. The Importance of Patient Education
Julie Keany Hodorowski, Carolyn Messner, and Caroline
Kornhauser
91. Legal Issues that Affect Quality of Life for Oncology Patients
and Their Caregivers
Kathryn M. Smolinski and Debra Wolf
Section 17. Practice Settings: Where Oncology Social Workers
Work
Victoria Kennedy
92. Oncology Social Work across Sites of Care
Victoria Kennedy
93. Oncology Social Work Practice in Hospitals and Cancer
Centers
Louise Knight
94. Veterans and Cancer
Louisa Daratsos
95. The Evolving Role for Oncology Social Workers in Business
Jennifer Mills
Section 18: Professional Development and Education
Katherine Walsh
96. Supervision and Professional Development
Annamma Abraham Kaba and Penny Damaskos
97. Life as an Oncology Social Worker: Career Planning and
Professional Development
Katherine Walsh
98. Grant-Funded Educational Programs in Psychosocial Oncology
Shirley Otis-Green and Sheila L. Hammer
99. Vicarious Resilience: Sustaining a Career over the Long
Haul
Debra Mattison
100. The American Cancer Society's Contributions to Oncology Social
Work
Virginia Krawiec and Greta Greer
101. APOSW and AOSW: Education and Development of Professional
Networks
Ann Fairchild, Christa G. Burke, Paula G. McCarthy, Stacy Stickney
Ferguson, and Katherine Walsh
102. OSW-C: The Importance of Certification for Oncology Social
Workers
Virginia Vaitones, Johanna Schutte, and Debra Mattison
103. NASW and Oncology Social Work
Elizabeth J. Clark and Stacy Collins
Section 19: Building Resilience in Interprofessional Practice
Penny Damaskos
104. Building Resilience: A Multifaceted Support Program for
Professional and Support Staff in a Cancer Center
Jane Bowling and Penny Damaskos
105. How Oncology Professionals Manage the Emotional Intensity of
Their Work
Elizabeth A. Rohan
106. Developing Core Competencies for Interprofessional Teams: A
Script-Reading Approach
Patricia McGillicuddy, Karen Gold, and Mandy Lowe
107. Schwartz Center Rounds®: Process, Outcomes, and Opportunities
for Improving Interprofessional Practice
Margaret S. Wool
108. Maintaining Competent Teams in Pediatric Oncology
Sima Zadeh, Jayne Phillips, Jeasmine E. Aizvera, and Lori
Wiener
Epilogue: Oncology Social Work Leadership: Innovators in a Changing
World
Grace Christ, Carolyn Messner, and Lynn Behar
Index
Grace Christ, DSW/PhD, Professor Emerita, Columbia University
School of Social Work.
Carolyn Messner, DSW, OSW-C, LCSW-R, Director of Education and
Training, CancerCare.
Lynn Behar, PhD, LICSW, OSW-C, Founder, Carol LaMare Initiative,
University of Washington School of Social Work.
"For decades, the Institute of Medicine has released one report
after another lamenting the gap between the recognition that cancer
affects the whole person, and our ability to address the human
needs of the growing population of cancer survivors and their loved
ones. With the inaugural publication of the Handbook of Oncology
Social Work, help is at hand. This long-awaited volume, written by
pioneers in the field of oncology social work, provides a
wealth of evidence-based information on how to deliver cancer care
for the whole person in a rapidly evolving health care delivery
system Kudos to the editors of and many contributors to this
outstanding volume, a
must read for anyone practicing in oncology.
--Julia H. Rowland, PhD, Director, Office of Cancer Survivorship,
National Cancer Institute, NIH/DHHS
"We welcome with great anticipation this comprehensive new Handbook
of Oncology Social Work. The Handbookr addresses those issues
frequently associated with the social needs of patients including
psychological and bereavement issues. Uniquely, it also includes
in-depth chapters on current topics such as identifying distress
earlier, approaches to diversity issues so frequent in our patient
populations, and concepts brought about by longer
survivorship. Never before has excellence in care for patients with
cancer required as strong a multidisciplinary team as now: this new
resource will contribute not only to social workers, but also to
all involved with
patients and families in the cancer setting. The breadth of
experience of the editors and authors is clear throughout the book
and enhances its value for all health care professionals in
oncology."
--Richard J. Gralla, MD, FACP, Professor of Medicine, Albert
Einstein College of Medicine, Jacobi Medical Center
"While there have been significant medical advances and increasing
numbers of cancer survivors, the human adaptive challenges to this
disease have in fact become more complex and long term. Social
workers are at the forefront of developing, implementing, and
evaluating a broad range of psychosocial services for this
population. The Handbook of Oncology Social Work offers educators
as well as new and seasoned professionals a wealth of evidence
based
information, practice wisdom, and the lived experiences of patients
and families to undergird their teaching and provision of care. It
is an indispensable text and resource for all educators and
practitioners in
health care."
--Jeanette C. Takamura, MSW, PhD, Dean and Professor, Columbia
University School of Social Work
The Handbook of Oncology Social Work is an exceptional,
state-of-the-art book that clearly addresses the key issues
confronting oncology social workers today. The book emphasizes
social work's strong values for sharing decision-making, helping
the most vulnerable and distressed, and reducing health disparity.
It is an essential resource for social workers and other
professionals who want to provide high quality, evidenced-based
care to people with
cancer and their family members."
--Laurel Northouse PhD, RN, FAAN, Professor Emerita, University of
Michigan
"The inaugural Handbook of Oncology Social Work is truly a social
work masterpiece. The editors have gathered the experts in the
field to compile the most recent evidence-based data in terms of
screening, assessment, and interventions that can provide the
greatest benefit to cancer patients and their families."
--James Zabora, ScD, MSW, Director, Research & Professional
Development, Life with Cancer©, Inova Health System; Assistant
Professor of Oncology, The Johns Hopkins University School of
Medicine, Baltimore, MD; President-Elect, APOS
The Handbook of Oncology Social Work is a comprehensive manual
addressing the multiple roles and evolving practice of this
specialty. By providing psychosocial support beginning at diagnosis
and palliative care through the end of life, navigating financial
issues and ongoing changes in the health care system, and helping
simplify the complexity of the new era of genomic profiling and
targeted therapies, the oncology social worker plays a critical
role
in enabling patients to optimize quality of life while dealing with
the emotional, social, physical and financial burdens of cancer.
This handbook is an invaluable resource for the entire cancer
community."
--Julie R. Gralow, MD, Professor and Director, Breast Medical
Oncology, Jill Bennett Endowed Professorship in Breast Cancer,
University of Washington School of Medicine; Seattle Cancer Care
Alliance; Fred Hutchinson Cancer Research Center
"It is extremely rare for there to be a textbook that is
simultaneously so comprehensive, well researched and clinically
practical. [This handbook] is clearly the new gold standard for
oncology social work. But to say that this textbook is limited to
social workers or cancer alone grossly misses the point. The
clinical, educational and research implications of this monumental
accomplishment are relevant for other health care professionals and
chronic illnesses.
The editors and authors represent the encyclopedic wisdom and
diversity of thinking of many of the foundational leaders in the
field and across disciplines. Significantly, there are also
provocative
contributions by many evolving leaders in psychosocial oncology
which deeply enriches this 'must own' treasure trove of
compassionate expertise.
--Matthew J. Loscalzo, LCSW, Liliane Elkins Professor in Supportive
Care Programs; Administrative Director, Sheri & Les Biller Patient
and Family Resource Center
"Persons with cancers are confronted with a deluge of information
and decisions about their illnesses and the impact on their lives.
Oncology social workers play a crucial role in helping patients and
caregivers navigate this sea of choices. The Handbook of Oncology
Social Work encompasses the breadth and depth of expertise and
compassion that oncology social workers bring to individuals and
families living with cancers."
--Mark G. Kris, MD, Attending Physician, Thoracic Oncology Service;
The William and Joy Ruane Chair in Thoracic Oncology, Memorial
Sloan Kettering Cancer Center, Professor of Medicine, Weill Cornell
Medical College
"The Handbook of Oncology Social Work comes at a perfect time.
Since beginning my career 23 years ago, I have seen the challenges
of serving oncology patients and their families become exceedingly
complex, with rising incidents of cancer, many more individuals
living with cancer, and increasing numbers of survivors, many of
whom, however, experience a reduced quality of life linked to
treatment side effects. The breadth and depth of the learnings
covered in the Handbook is a brilliant blending of the history,
knowledge, wisdom, and experiences of the nation's oncology social
workers integrated with the stories and voices of patients and
families. The
Handbook is the manual that every oncology health care team should
read."
--Moreen Shannon-Dudley, MBA, MSW, LICSW, Director, Supportive
Care, Radiation Therapy and Specialty Clinics, Seattle Cancer Care
Alliance
"The scope of practice covered in this handbook is essential for
any oncology social worker, whether they are new to the field or an
experienced practitioner. The handbook will be required reading for
all social work interns and fellows. The sheer number of topics and
authors reflects the great advances we have made in providing
psychosocial care for people living with cancer and their families
over the last three decades. It is written in language that is
easily transferrable to practice, which will be helpful to social
work practitioners and others across the continuum of care in
oncology. The authorship of this book is astounding!
Congratulations to the
many contributors and editors of this wonderful handbook. "
--Christina Austin-Valere, PhD, LCSW, Clinical Oncology Social
Worker, Bienes Comprehensive Cancer Center, Holy Cross Hospital,
Fort Lauderdale, F
"Oncology social workers have played a central role in developing
the science and art of psychosocial care for people affected by
cancer. The size and scope of this inaugural edition of the
Handbook of Oncology Social Work is a testament to the numerous
important contributions oncology social work has made to the field
of psychosocial oncology in the areas of clinical care, education,
research, program development, and health policy. Although the
focus is on
oncology social work, I am certain that professionals in all other
fields of oncology that involve patient and family care will find
it to be an invaluable resource."
--Paul Jacobsen, PhD, Associate Center Director, Division of
Population Science, Moffitt Cancer Center
"This inaugural Handbook of Oncology Social Work codifies in
exemplary fashion the wisdom, clinical practice, and art of the
oncology social work profession. This outstanding publication
highlights the variety of challenges experienced by people living
with and undergoing treatment of cancer, cancer survivors, their
caregivers, and the bereaved. It provides an overview of multiple
topics and excellent clinical practice guidelines for all
oncology
disciplines. I congratulate the editors and authors for their
vision in creating this exceptional book which is an invaluable
resource in psychosocial oncology and for all health care
professionals."
--Edith P. Mitchell, MD, FACP, Clinical Professor of Medicine and
Medical Oncology, Program Leader, Gastrointestinal Oncology,
Department of Medical Oncology, Director, Center to Eliminate
Cancer Disparities, Associate Director, Diversity Affairs, Kimmel
Cancer Center at Jefferson
"In this rapidly changing health care environment, the
comprehensive Handbook of Oncology Social Work is a valuable
resource for social workers and members of the health care team who
are working to meet the complex needs of people with cancer and
their loved ones. Recognition of psychosocial needs and their
impact on outcome has led to mandates requiring assessment of
social, emotional, and financial concerns and protocols for
addressing these needs.
Social workers are on the front lines in implementing these new
quality measures and in developing programs to assist a growing
population. The Handbook defines and describes the range of
interventions used by
social workers to meet 21st-century needs and will become the
cornerstone of oncology social work practice."
--Diane Blum, LMSW, Former Executive Director, CancerCare; Former
Editor-in-Chief, Cancer.Net; American Society of Clinical Oncology
(ASCO)
"This comprehensive handbook written for oncology social workers is
an important resource for anyone who works with people with cancer.
It is practical, informative and organized in a manner that makes
it easy to use. The nonmedical needs of a person with cancer are
vast and always changing, this handbook strives to address them
all. As an attorney in this field, this handbook will further my
understanding of the psychosocial and practical needs of my
clients."
--Randye Retkin, Esq, Director LegalHealth, New York Legal
Assistance Group
"The Handbook of Oncology Social Work is truly historic. It is the
first book that provides both a comprehensive and deep sense of the
myriad roles and values of social work in addressing the complex
issues associated with the number two cause of death in the United
States. Whether seasoned or new to the field, social workers will
find this volume a constant companion to increase their knowledge,
skill, and influence on the health care system. Its
framework is essential social work-addressing the biopsychosocial
and environmental factors affecting cancer patients, their
families, and the settings in which they receive services and
benefits. Beyond social
workers, its interdisciplinary focus should speak to physicians,
nurses, and other health care providers, as well as family and
professional advocates across the continuum of care."
--Terry Mizrahi, MSW, DSW, Professor, Silberman School of Social
Work at Hunter College; Co-Chair, Community Organizing, Planning &
Development
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